My experience as a person with Hereditary diffuse gastric cancer (HDGC)
In 2007 my older sister passed away at the age of 35, we were told afterwards that she had Gastric Cancer. I also found out that my nanny passed away from gastric cancer too.
In 2021 I had Lobular breast cancer, and I asked to get genetic testing done because we had lots of cancer in my whānau with my mother and 2 siblings been diagnosed. It worked out that my mother and sister had a different breast cancer so that wasn’t genetic. But because my other sister and nanny passes of Gastric cancer and myself having Lobular Breast cancer, I was tested for the CDH1 mutation gene and got my results in Feb 2023. I was the 1st whānau member confirmed with the CDH1 mutation gene.
Due to having the CDH1 gene I was a high risk for getting HDGC. The recommendation was to get my stomach out as soon as possible.
Finding out I had this gene I looked to my tūpuna asking why this was happening. The answer I got was you carry lots of mamae (trauma/pain) form our whakapapa lines. The pūmanawa (stomach) is where we store our emotions, and you have been sorting generations worth! This was confirmed in more than 1 of my own Honohono healing session. 1 person said, “that the emotions of my tūpuna were trapped in a triangle inside my tummy unable to get out.”
Knowing the history of my whānau with gastric cancer and learning that I have the CDH1 mutation gene then the findings of the mamae of generations been stuck inside the triangle unable to escape. Also knowing my partner was dying from another rear cancer all helped me decide what I needed to do for my tinana (body), my ora (health) and my whānau.
By Nov 23 I had my full stomach removal. This is a lifesaving surgery and was for me! My stomach was tested and found to have Hereditary Diffused Gastric Cancer within the lining.
While in hospital I had some struggles, so I put a call for support out asking for karakia and healing vibes. My friends I trained in Honohono with sent me karakia and healing vibes. I could feel the wairua and love from around the world!
When I got home, I also had struggles and used my own abilities in Honohono to help me. An example of this was:
PROBLEM: Before leaving the hospital, I started vomiting. This lasted 24hrs. When going home it caused eating problems for me resulting in losing weight to fast. The medical team wasn’t happy with this and informed me that at this rate I will be having the feeding tube in for another 3 months. I wasn’t happy about this!
How I changed my eating problem:
· In the shower I asked the water to cleanse my body
· I felt the feelings and emotions that came up throughout my charka system
· Speaking the feelings out loud, I acknowledge the emotions that came with them, allowing the tears to run
· I then changed the story to what was acknowledge with positive stories as to why I should now eat
OUTCOME: Straight away I was able to eat again. My next checkup a week later the medical team were amazed and asked what had changed for me. I told them what I did, and they said well it’s working. A couple of weeks later they were happy to take my feeding tube out.
Hereditary diffuse gastric cancer (HDGC) is a genetic condition characterized by an increased risk of developing gastric cancer, particularly in individuals carrying mutations in the CDH1 gene. This type of cancer is known for its often-late diagnosis due to subtle symptoms and diffuse tumor growth, making it challenging to treat effectively. Those affected may undergo preventative surgical procedures, such as gastrectomy, in an effort to manage their risk.
Rongoā Māori, the traditional healing practices of the Māori people of Aotearoa (New Zealand), can play a significant role in supporting individuals on their healing journey, particularly after surgical interventions or during other cancer treatments. The philosophy of rongoā is rooted in a holistic approach to health, encompassing tinana (physical), hinengaro (mental), wairua (spiritual) and whakapapa (genealogy) well-being.
Healing Hīkoi with Rongoā Māori
Tāngata Whenua Connection: Engaging with the natural environment is a fundamental aspect of rongoā Māori. Spending time in nature can promote a sense of belonging and facilitate healing. Practitioners often encourage walking in forests, engaging with the land, and using natural resources for both physical and emotional recovery.
Use of Native Plants: Rongoā practitioners utilize a range of native plants for their medicinal properties. Herbs such as kawakawa and mānuka possess anti-inflammatory and antiseptic qualities that can support the body’s healing processes. These plants may be made into teas, poultices, or tinctures tailored to individual needs.
Waiora (Water): Water, especially when blessed or drawn from sacred springs, holds significant meaning in Māori healing practices. Hydrotherapy or using water-based remedies can promote physical recovery and emotional cleansing, creating a space for reflection and renewal.
Whakawhanaungatanga (Relationship Building): Building strong relationships with family, community, and healers is central to rongoā Māori. Engaging with loved ones during your healing hikoi can provide emotional support and a sense of security. Sharing experiences and healing stories fosters a communal approach to health.
Spiritual Practices: Spiritual healing, including karakia (prayer) and mahi a te Atua (working with the divine), forms an integral part of rongoā Māori. These practices help individuals connect with their spiritual selves, seek guidance, and find peace during a challenging time in their lives.
Mindfulness and Mental Well-Being: Meditation, traditional chants, and storytelling are used to promote mental well-being in rongoā Māori. These practices can help individuals cultivate mindfulness, improve emotional resilience, and provide a framework for processing their experiences.
Incorporating rongoā Māori into the healing journey for hereditary diffuse gastric cancer can contribute to a holistic recovery process, addressing not only physical health but also emotional and spiritual aspects. It is essential for individuals to work closely with rongoā practitioners, health professionals, and supportive networks to create a personalized healing pathway that honors their unique experiences and cultural heritage.